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Pilomyxoid Astrocytoma - PMA brain tumor information, support, treatments
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He shall
cover you with His feathers, and under His wings you shall take refuge; His
truth shall be your shield and buckler.
Psalm 91:4
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Please click here if your child has a PMA tumor to enter them in the patient registry
I started this group in 2005. We now have over 70 members. Members have access to a database of patient treatments and outcomes, journal articles, support available for children and caregivers, and discussion group.
If your child has been diagnosed with a Pilomyxoid or Pilomyxoid mix tumor, please sign up for the Pilomyxoid Registry through Johns Hopkins Hospital. This is a worldwide database set up through the PA/PMA research fund at Hopkins to help see what treatments work and which ones do not.
Our youngest daughter was diagnosed a pilomyxoid astrocytom a, a rare pediatric brain tumor, located in t he optic chiasm/hypothalamic area of the b rain in 2005. We are a Christian family and would like to s hare our experience of all God has taught us through this, and let others know abo ut the research b eing done at Johns Hopkins Hospital"><META NAME="keywords" CONTENT="valerie, grace,christian,God,pilomyxoid, astrocytoma,pma,2005,optic,chiasm,hypothalamic,pituitary,child,infant,brain,tumor ,healed,research,clinical,trial,trials,chemotherapy,alternative,treatments,radiation,proton, beam,cyst,shunt,ommaya,reservoir ,surgery,parents,PMA |